enhörning's Friends
[Most Recent Entries]
[Calendar View]
[Friends View]
Below are the most recent 25 friends' journal entries.
[ << Previous 25 ]
| Friday, July 4th, 2008 |
asperger
[ dearmisterecho ]
|
2:39a |
Hostility as a default I've started to realize that I'm so clueless at reading people that my automatic response is to be hostile. It's a coping mechanism I've had since I was about 10 and was struck violently in the face with the fact that I'm utterly clueless at understanding people's motives and intentions...I think of it as almost as me going into survival mode. I can't be naively trusting of everyone - that's how you get taken advantage of, like has happened in the past - so my only other option is to simply reject everyone. Is anyone else in the same boat? How do you get out of it? :( Current Mood:  blah |
| Thursday, July 3rd, 2008 |
asperger
[ sr_rivka42 ]
|
10:24p |
Autistic child denied chemo I'm frantically trying to post this to multiple places, and I apologize if this post seems somewhat incoherent. ABC News (and other places) have reported the sad story of Jeremy Fraser, an autistic boy who is terminally ill with cancer because his mother neglected to give him maintenance chemotherapy. With the maintenance chemo, his chance of survival would have been around 85-90%; now it's less than 10%. His mother is under investigation, but was able to walk out of court without even having bail posted. The courts of Salem, MA don't seem to value autistic lives very much. I've blogged about this myself here. I know that some religious nuts do the same thing because of wacky beliefs, but I'm infering that this is largely because Jeremy's mom couldn't handle him being autistic, or conciously or subconsciously wanted him dead. After all, she didn't object to chemotherapy originally. I presume that a Christian Scientist (or whatever) would have objected to any sort of medical treatment whatsoever. It seems like this tragedy is the result of the popular conception that autistics are "better off dead." I don't quite know how to adequately respond to this, but please tell others about this sad situation. Current Mood:  depressed |
asperger
[ kisekileia ]
|
10:28p |
Horrifying post on autistics.org Is anybody trying to help the person who wrote this? This person has been so clearly and obviously screwed over, all because of people who were unable to recognize what was going on and just blindly insisted that previous diagnoses must be correct. There's no reason why a psychopathic person would insist that they were autistic, and discovering what is wrong with you in a book, presenting it to professionals, and not understanding why they don't listen is a very autistic thing to do. Is there anyone on this site who knows somebody who could help this person somehow get assessed by a competent and caring autism expert who would be willing to start fresh and not look at previous information? Obviously the person would need to talk about the symptoms while saying as little as possible about what other doctors concluded in order to make sure that the expert kept an open mind, but surely something could be done about this. |
asperger
[ winterwillowweb ]
|
2:51a |
I spent three days writing my "life story" I don't know how to post it for anyone else to read, but it's 30 pp, 14pt TNR font, 1.5 spacing. I figure I'll hand it off to the next therapist; let them read up before we get started, decide if they think they'll be able to do anything. I feel that I did a fairly good job at not dx'ing myself, I did mention the dyslexia, which I had a dx for, the ADD which a college psych decided to add, and the rest I just alluded to, and I think I hit just about every part of the spectrum-y stuff I could think of. All I left out is that I spent 3 days strait typing and adding and re-wording and re-arranging... It did give me three days off the compu...well, the computer games at least. *shrug* Now I just fear that it's too much or poorly worded, or... not good enough... (don't mind my giant inadequacy complex...) But I do feel a little accomplished. And yet I am afraid to share with my partner, for fear that she will disapprove...but i am always like that... i am always afraid that everyone will disapprove of me... |
| Wednesday, July 2nd, 2008 |
asperger
[ itsa_wallaby ]
|
10:18p |
Ayumu Kasuga (aka Osaka)
I've only been here (reading this community) a short time, but have noticed that a very large number of member use an avatar with Ayumu Kasuga (aka Osaka) from Azumanga Daioh. I was just curious as to why, if anyone wants to share their own reasons..? |
asperger
[ thetwitchychick ]
|
9:08p |
Now I know I'm an alien.
Today is my 21st birthday, and I'm having a great evening! I've spent three hours sorting and cleaning very small seeds and will probably spend another couple of hours on that project.
Everyone who's called today to wish me a happy birthday have been shocked and appalled (a bit of an exaggeration, but...) at my plans for the evening. I know I should, by rule of society, be going out and getting completely smashed, but I have no desire to spend all evening in a bar and it's not like I've never had a drink or bought alcohol before.
I can honestly say that I've never felt more alienated from my peer group than I do today. |
asperger
[ sr_rivka42 ]
|
5:20p |
The Perils of Air Travel Cross-posted here at my new blog.
As I will hopefully getting around to writing about later, I had a wonderful time at Autreat. I greatly enjoyed meeting people there (including at least two members of this community), and it was undoubtedly the best group social experience of my life. Autreat itself was a remarkably stress-free environment for me, due to being accepting of stims and use of alternative communication if need be. Autreat generally did not cause stress. Getting there and returning, however, was a nightmare. In this post I will make a few suggestions about making air travel more autistic-friendly, drawing from my recent experiences.
( More under the cut )
|
leisuregames
|
9:46p |
Remember New Style games?
Do you remember Hogsheads New Style games? They were very much like the indie games we now know and love. Puppetland/Powerkill, Baron Munchhausen, Violence, Pantheon, De Profundis. I'm sure some of them will get back into print one day. I'd love to see them collected into one volume. We still have some of them in stock at the shop. I'm not sure if they appear on the website, but we do have them. |
leisuregames
|
9:13p |
This week #2.
'Free RPG Days' has turned out to be a very encouraging and enjoyable thing. I've been handing out bucket-loads of stuff to kid's from local schools. It's not so common for new young role-players to appear in the shop, but over the last few days we have had quite a few, and happily that has coincided with Free RPG day. Some of the kids were the same age that I was when I started playing D&D, and they walked off with Traveler, & Tunnels & Trolls (the two games I moved onto after D&D). That made me feel good. I have added some copies of Puppetland to the 'free' box, and I'll get down in the basement in search of other things to add later this week.
The new releases were a little less exciting than last week, but we did get Agricola back in, and the first issue of the new World at War magazine. There's also a huge box of Flying Buffalo stuff waiting to be sorted out, so they will probably appear on next weeks new releases/restocks.
We have been talking about getting some in store gaming sorted out again in the near future. It's most likely to happen on Saturday's, but may also be possible in the early evening if we go ahead with or proposed once per week late opening. If you are interested in running or playing something in the shop, then let us know. |
| Friday, August 1st, 2008 |
asperger
[ dearmisterecho ]
|
4:39p |
Zazzle made a mistake Turns out the big hoop-la over the "Autism Speaks does not speak for me" shirt was due to employee ignorance than Big Brother pressure from Autism Speaks. Read about it here. |
| Wednesday, July 2nd, 2008 |
sidhelai
|
6:29p |
|
| Thursday, July 31st, 2008 |
asperger
[ dearmisterecho ]
|
4:54p |
10 hours later... Hey everyone...I posted recently about writing about my whole theory on why I have AS for my therapist who seems to not get the point during our sessions. I'm posting it here for those who are still trying to figure this whole crazy thing out, or others who are going through the same thing and could use some kind of layout for how to discuss these things (I've been told repeatedly here that I'm able to describe things pretty well, so I want to help in any way I can!). I'm open to any suggestions or additions, as I'll surely be adding little things over the next couple days. I've worked 10 hours straight on this. If that isn't sign of an obsession, what the hell is? Beware, it's 16 pages. Here's the Microsoft Word doc on MediafireI also just want to say thank you so fucking much to everyone here who has helped me understand my symptoms and experiences, who have told their stories and made me realize that I'm not alone in this crazy world. You all are the shit and I am eternally grateful to each and every one of you. I hope this document will push me closer to joining the ranks of the formally diagnosed :D Current Mood:  impressed |
| Tuesday, July 1st, 2008 |
asperger
[ itsa_wallaby ]
|
12:43a |
Hi, I'm new here... I probably have AS, but I'm not diagnosed. Anyway, I was reading a discussion on wrongplanet.net, and they asked the question "Has anyone ever tried acting NT?" There were a bunch of responses, and this one I thought was really useful. It has 5 fairly common situations and general rules of how you should respond. Here is the discussion topic and post. I'm always afraid I'm breaking the rules I don't see, so I hope it's okay to post something like this here. I thought it was really useful, and I cross-posted it to my own journal, and I wanted to share it with other people. EDIT: I didn't realize I wasn't supposed to quote things from the discussions on wrongplanet.net in other places, but I e-mailed the author and am waiting for a response. In the meantime, I deleted the main quote from here; I left the link to the site though. (And made it more specific to the actual post, thanks to codeman38.) |
| Monday, June 30th, 2008 |
asperger
[ devo_bxxp ]
|
5:51p |
"The Parenting Aspergers Resource Guide" E-Book? Here's an interesting website that I noticed recently - Read MoreWhat are your thoughts/opionions/reviews on this resource? Does it accurately portray the truth about AS? Current Mood:  contemplative |
leisuregames
|
3:05p |
Free RPG Day.
We did get our stuff in the end, and so free RPG Day is every day at Leisure Games until we run out of stuff, perhaps we have already run out over the weekend? We have been talking about adding some of the secret old stuff from our basement to the selection of free stuff. I was very impressed by the Hunter preview book. It seems to have been very well thought out. I have never been a WOD player, but I instantly wanted to buy Hunter after seeing this. |
leisuregames
|
1:34p |
New Releases - 30th June 2008 |
| Sunday, June 29th, 2008 |
asperger
[ turn_er_away ]
|
9:28p |
A rather deep and philosophical rant I've been thinking almost too much lately about my relation with Asperger's. I'm 20 years old and I feel like I have accomplished almost nothing. I have never worked and I have not attended school since High School. Of course the AS has something to do with this but not all of it by any means. I had horrible Bipolar mood stuff going on as well. So I reflect back on life and bigger issues a lot. If anyone isn't clear on what I mean then please ask about it. I hope I don't offend anyone but parts might be controversial ( Here lies rant. ) Current Mood: contemplativeCurrent Music: And All That Could Have Been - Nine Inch Nails |
| Saturday, June 28th, 2008 |
asperger
[ oleyant ]
|
9:36p |
Socializing at Aspie support groups
On June 26 the question came up whether it is a good idea to go to/socialize at Aspie support groups. I went to my first tonight -- in Washington, D.C. -- and found it very rewarding. Obviously that's only one data point but if you haven't been going I would say definitely give it a try. The directness that everyone had was refreshing and there are plenty of people willing to chat. Thanks to everyone who talked to me, I know several of you read this list!
It's an interesting question what makes some of these Aspie meetings go better than others, how much structure they should have, and so forth. I'm no expert here but I'd be interested in reading your thoughts in the comments... |
asperger
[ minikitkatgirl ]
|
3:41p |
Gersh Academy Graduation Speech I was approached a couple of few weeks ago to speak at a high school graduation for the Gersh Academy, which is a school in Hauppauge out here on Long Island (New York) for students with autism, Asperger's, and other neurobiological disorders. Well, yesterday was the big day, and I delivered what turned out to be the keynote address (they gave me the title of Keynote Speaker. Me! Keynote. Hee). Well, afterwards, so many people in the audience came up to me and told me how inspirational it was. One woman even said that it made her think about how she'd behaved in high school, and whether she could have been a little nicer to those who were different or who didn't run in her social group. But what really had an impact on me was when one of the graduates told me that he loved my speech. He and the others were whom I was hoping to reach, and it looks like I did. In addition to my speech at the graduation marking my first-ever keynote address, my father was able to record it using our new videocamera. The audio is a little wonky in the beginning, but it gets better as it goes on. So, if anyone would like to see my speech, you can find it here: http://www.youtube.com/watch?v=cr_3nkV8rW4. I just hope that I did the Aspie community proud. I wanted it to be a speech that people on the spectrum could relate to, a speech that I wish I could have heard when I was graduating. So hopefully I accomplished that goal. ( Transcript of the speech, for those who want to read it ) |
asperger
[ skyrabbit ]
|
5:31p |
This eye contact thing...
... gets even more complicated!
I was engaging in a little lighthearted eye contact practice with my partner in the pub the other night (I'm not that good at it even with him, though I am comfortable enough with him to practice) and he noticed that when I do it, my eyes flick rapidly back and forward between one of his eyes and the other.
I had no idea I was doing this before he told me - it does not feel as if I am doing it. Thinking about it, what I must be trying to do is to look at both of his eyes simultaneously - which is presumably physiologically impossible. I asked him what he does, and he said he just focuses on one eye. I then asked him how he chose which one to focus on, and whether it was always the same one and if he would shift to the other one at all, but he said he didn't know (and got a little irritated, as he tends to do when I press him for such details!)
So that's how it's done? I have tried it that way a few times since, but it feels even weirder than what I was doing before, and not really any more comfortable, so perhaps I will take the advice I have seen here quite a bit, of looking at people's noses. (I did practice that as well, and my partner said it was pretty convincing - especially as my eyes didn't move about when I did it! He said that looking at his mouth was not convincing, as my gaze was obviously too low.)
I was wondering if anyone else here did the eye flicking thing. You may well have to ask some trusted other for feedback to find out.
(Incidentally, my partner also confirmed that I did it when looking at my own eyes in a mirror.)
|
asperger
[ dearmisterecho ]
|
10:15a |
Hyperflexivility
I'm not too sure where I got the notion, but does there tend to be a trend in the autistic population for hyperflexivity? My masseuse commented on whether or not I had been a dancer or gymnast (which brought on the LOLs since I'm the complete opposite), because my joints were hyperflexive. She suggested that I do strength training to build my muscles since they have to pick up the slack for my joints.
Anyone else like this? |
asperger
[ winterwillowweb ]
|
12:33a |
I have decided that i hate my therapist. I was telling him about my concerns about being on the spectrum, here's the I posted in another community- sorry it's long and a lot, it contains all my replies to communiry members long story short, I don't have the guts to tell him I want someone new, I know I that if I told him I wanted to change to the only other therapist (female), he'd want to know why; and he's the head of the program I do believe... But I am supposed to go back on Monday, and I don't want to. I'm just frustrated. I'm 26 years old, I should be able to handle stuff. But i'm just a giant wimp. BTW, I'm new, have no official diagnosis. |
| Thursday, June 26th, 2008 |
tewodros
|
11:30p |
Reminiscences
This morning, the darling postie brought me my magical new USB floppy drive, and I proceeded to spend the day transferring data from my implausibly large collection of old 3.5" discs onto my new computer. And it went pretty well. There were only two discs that it couldn't manage to read at all. I do vaguely recognise them, but I haven't got a clue what was ever on them, I have a strong suspicion that they probably date from the 1980s. Among the others, there were two letters I'd once written that I found my computer unable to recognise: but that's two among several hundred, so I don't feel too hard done by.
And then, giddied up by just well it had gone so far, I retrieved my really old computer from its cupboard, and I was pleased to find that -- unlike the merely old one -- the really old one still works just fine. And so then I proceeded to save all the documents from that one onto floppy discs, and then, with the aid of my cherished new piece of tackle, I went straight ahead and put them all onto my new computer. And I suspect that I'm going to be spending quite a while, over the next few days, simply reading back over old documents and reminiscing. Among many other things, I now have proper access to:
* Several hundred letters, as already mentioned, written between the time of my first learning to type and my getting the hang of email.
* My PhD dissertation! I do have one single hard copy: but, until today, I never got round to transferring my digital version(s) onto anything worthwhile and current. But it's all there now (if a bit rubbish and embarrassing!).
* Three full-length novels that I once wrote. Not for anyone else ever to see, just for my own satisfaction: so don't ask! And I have a strong intuition that hard copies of two of them are buried somewhere in the various boxes in my various cupboards. But, outside my collection of floppy discs, I'm quite certain that I didn't manage to keep a copy of the third one at all. And, let's face it, it was the best one. But now I look forward (with some trepidation) to reading that one back.
* Essays, in numerous drafts, not only from my time at graduate school (as they were wont to call it in that country), but also from my undergraduate days. In the latter case particularly, I'm astonished to see how clever I used to be! As I was doing all this digital business, I happened to pull up an undergraduate essay, just to see whether the transfer was working, and I read one single paragraph. It started with a point that someone or other had raised about Church's Thesis, and I thought (here, now, in 2008): that's actually a pretty good point! And then I read on and I saw my own 1995 response to it. And that one really was a fucking good point! Ah, once upon a time, in a little undergraduate's essay, that fellow got his smack down!
Meanwhile, I have finally entered the world of BitTorrents, purely to get my hands on all the John Peel shows that are out there. This very afternoon, I was listening to a 1969 episode of his Top Gear programme, and I was most amused (what with hindsight and all) by the following remarks. Introducing a certain track, and giving the name of the artist, he then added: "... whom some of you may remember, I hope I great number of you will remember, seeing doing mime things of one sort or another on the Tyrannosaurus Rex tour, and this is it..." The track then follows, after which old uncle John says: "Well, I don't see that being what we in the trade seem to call a 'chart-bound sound' in a thousand years, but I wish it would be though, and I hope the record company's encouraged to release an LP as a result of it anyway. It's called 'Space Oddity' -- clever play on words, David -- and that's by David Bowie." Does this qualify as prescience, or as the very absence thereof? (To clarify, that single made the top ten two months later, and the rest is history).
And, while I'm still reminiscing, tonight I went and saw I, Ludicrous at the Bull & Gate, supporting that bloke out of The Adverts. And, after more than twenty years as a duo, tonight was the night that they introduced a third member into the band, playing bass guitar! Admittedly, it wasn't the best set that I've seen from them. Even despite the inclusion of "Chav it up with Jeremy Kyle". But, afterwards, I had a word with one of them, and I pointed out something that strangely hadn't occurred to me until today. Namely, that I have a recording, from my teenage years spent pressing play and record, of a live session and an interview that they did on Radio Cambridgeshire in January 1988. I was always aware that I had this recording, but it only just today occurred to me that perhaps they didn't actually have a copy themselves, and apparently they don't, so I shall send them one. |
asperger
[ sheppeyescapee ]
|
10:41p |
Social Groups So far I have been to two AS social group meetings, they are pub groups and have loads of fun so far. I went tonight and felt really at home, met some nice people that had special interests similar to mine, the 2hrs really went far too quickly. It was nice to feel like I belonged, not the person at the edge of the room left out of everything going on. Anyone else on here go to any AS social groups? Current Mood:  pleased |
asperger
[ arathian ]
|
4:33a |
Busted engines? One thing that has plagued me time and again and people treat me like an idiot about, is my nigh inability to divine anything I want to glean from ANY form of infernal bloody search engine on the Internet. Is that just an Aspie trait or what? I mean I put in descriptors that seem like they ought to lead to the information and such I want to find and then... nothing. Just a massive aggravating wild goose chase through the never ending expanse of the world wide web. Is it like bad luck on my part that my eyes just don't happen to see the best pages for what I seek? Is it that I see those but instead check another that doesn't have what I want and I never look closely at the one that will give me what I want? Is it that I put TOO many descriptors? Too little? Too vague? WHAT!? Sorry it's just, it happens again and again and again and again and I'm starting to get just a WEE bit fed up with it already.
Am I the ONLY one that this keeps happening to, or is it just something people of our ilk are just sort of unfortunately prone to do to how we, as a general whole, tend to think and approach things?
Well I go back to my fruitless search.
Current Mood:  frustrated
Current Music: Rolling Stones - Paint It Black |
[ << Previous 25 ]
|
![[info]](http://p-stat.livejournal.com/img/userinfo.gif){kind=small}
enhorning's Friends Page